Thursday, August 14, 2014

Life, Death, and Hope

The last two years have been one of the most vulnerable, challenging, and yet, beautiful of my life. As I worked non stop on a new album, I wrestled and dug deeper than ever before to write the most authentic songs I could find. I learned a lot. But I think, most of all, I learned that there’s is so much inside that I’m unwilling to face. Pain, hurt, fear, insecurities, love, so many things. And I thought when the album had finished that I was done with the depths. But I guess there’s deeper to go still. Not deeper into music, but into life. And not the fun fluffy part either. The dark, crappy part. 

As I write this, my eyes are filled with tears, and my heart heavy with a strange concoction of sorrow, and some sort of deep mystic peace. 

My wife and I have three beautiful kids. And now we’re expecting #4 (I know, we’re nuts). We’re 18 weeks in, and today we found out it’s a boy (we thought for sure it was a girl - guess you never know). Since we found out we were pregnant we have been overjoyed, and kind of tripping, at the idea of FOUR KIDS! When we found out we were pregnant, we were crazy shocked, but really excite, and were in great anticipation as we arrived at our first scheduled ultrasound. Everything seemed perfect. We saw the baby kicking, moving, and he even hiccuped on cue! Everything looked normal. Until we came to the baby’s head, and something wasn’t right. After deep examination and another ultrasound, the doctor informed us that our baby has “Anencephaly" - the absence of a large part of the brain and skull. It’s a tragic birth defect, that only ends in death. Often the brain will form (and work) as usual (hence the normal movement, hiccups, heartbeat, etc.) but without the full skull to protect the brain, the baby cannot survive outside of the womb and will die at birth. Many choose to terminate the pregnancy which, on some level, sounds like a reasonable thing to do, knowing that the baby has absolutely no chance of survival. But it’s impossible for us to wrap our brains, and hearts, around the idea of us being the ones to “pull the trigger”, as opposed to letting nature, through God’s design, take the baby when it’s time. 

So what’s the next five months of our life supposed to look like? And how are we supposed to deal? No clue. There’s no handbook for this stuff. And there’s no cute Hallmark card to make us magically feel better. There’s just reality. Sometime in early January 2015, a beautiful little boy will be born. We’ll name him (something lovely I’m sure), we’ll hold him, we’ll kiss him, we’ll weep with him, and we’ll say goodbye. That’s a sentence none should every have to write. It’s not how it’s supposed to be. I honestly can’t imagine the pain this will cause us, nor the pain that will come with seeing my wife walking around with a big pregnant baby belly, knowing that we’ll never bring that baby home. Or how it will feel to have people ask us when we’re due, what we’re having, or what we’re naming the baby. There will be no baby shower this time around. There will be no infant car seat in our car as we pull up to the hospital to give birth. The last several weeks have been very hard, and we don’t expect it to get any easier. Since the moment we got pregnant we had the overwhelming feeling (more than any other time) that this baby was an absolute gift strait from God. And he is. It is still a miracle to see a baby formed from a little tiny nothing. And even today, seeing the baby kicking and moving his little fingers. It’s a miracle. And it’s beautiful. But still, it hurts. Bad. I dread the thought of our kids seeing a baby growing in mommy’s tummy, only to know that they will never hold him, play with him, or talk to him. I hate that my wife has to deal with all the side effects of being pregnant, and has to be nauseous everyday, and will probably have to make more trips to to the ER because she’s dehydrated again from vomiting too much. And then to go through all of the agony of labor, only to to give birth to a baby we will never take home with us. A baby that will die in our arms. Pregnancy sucks for my wife (as for many women), but there’s always an amazing joy filled experience at the end - holding your beautiful (living) baby. But not this time. It’s tragic. And yet, as weird as it may sound to some people, we really do believe that God is good and that His love is never failing. And we feel it. Like for real. More than ever. But life still sucks sometimes. Sometimes real bad. Jesus said, “In this world you will have much trouble. But be of good cheer, I have overcome the world.” Someday, all things will be made right, and there will be no more sorrow, no more pain, and NO MORE DEATH. All will be overcome. And all will be made right. But for now, like King David wrote in his song “Even though I walk through THE VALLEY OF THE SHADOW OF DEATH, I will fear no evil, for YOU ARE WITH ME”. There’s something beautiful and rich about feeling the presence of God in the deepest, darkest pits. There’s something down here in the depths. Something I’ve never experienced when I’m on the surface where there’s rainbows, and pretty little flowers. And the presence - it’s everything right now. We honestly can’t survive without it. Without the real presence and comfort of the Almighty. He is the only thing that is bringing us deep peace (and even joy). It’s beyond the natural. And we’re thankful for it. We also know that we often don’t get to know “why”. And we’re ok with that. So we trust and surrender.  We choose to not surrender to depression, fear, or anger, but surrender to trust, to love, to peace. Seven years ago, when we miscarried twin boys (Zion and Hezekiah) and my mom said something through her tears: “Dom, our job as parents is to get our kids to Heaven someday. So, good job son.” It’s so sobering to think that HALF of our kids will be there together before us. Death sucks. The scriptures call death an enemy. An enemy, that when the Kingdom comes, will be defeated. There will come a day. And I long for that day. The day that death is no more. And her companions, sorrow, and fear, are no more. Come that day, come that day.




12 comments:

  1. My heart goes out to you and your family. I truly believe you are making the right decision and you will be stronger for it.

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  2. Praying for you and your family as you welcome this wonderful baby boy into your family. Praying for your wife as well as she is feeling sick. Also, this Christian couple went through the same path you're currently on. I hope you find encouragement through their story. http://vaporandmist.wordpress.com

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  3. Dom, As a parent who carried our first daughter 32 weeks and lost her minutes before she was delivered, I feel your pain. There is another couple who shared their journey very similar to yours, only it was their first little miracle (search Carrying Colin). God has a reason and a purpose for EVERYTHING! Hold tight to the promises of the Almighty!

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  4. I just shared this with mybiblestudy group. We will be praying for you all. Words fail to comfort, but I am confidet that our great God will comfort you through this season.

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  5. My family and I will be praying for you and yours. This is a sad, but good situation. Your little one will be in heaven with your other two and The Best Father EVER. I pray all of you have the peace that passes all understanding and hope that comes from the Almighty. Amen. Remember that our God is bigger than any physical deformity and your little one could be the one that beats all human odds. The joy of the Lord is your strength!!! I know you have heard these, but Gods Word is always good to hear again.
    Phil.4:4-9 Neh.8:10b Her.29:11
    In Jesus,
    Aaron and Nikole Magnino

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  6. Hi Dominic,
    I was sent your blog by a relative. I reading your words and feel like I'm reading my own blog. We had a diagnosis of anen almost a year ago and gave birth to our Leilah 6 months ago. Your words are so true "we really do believe that God is good and that His love is never failing. And we feel it. Like for real. More than ever." All I can say is Amen! This is an unfair, sucky path but HE IS GOOD and will continue to be good. If you or your wife need anyone to talk to we would love to connect. Meanwhile we are praying for you and cheering you on.
    Also Christa Black, she's a worship leader/author has great stuff www.Christablack.com
    Psalms 27: 13-14
    I remain confident of this:
    I will see the goodness of the Lord
    in the land of the living.
    14 Wait for the Lord;
    be strong and take heart
    and wait for the Lord.

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  7. Dom, my name is Brian Perry and my son Colin Patrick Perry was born sleeping on 10.24.2012. He too had Anencephaly. We have some videos on our website www.carryingcolin.com that can give you some insight on how the next 5 months of your pregnancy can be. I am here if you need me. Just email me on our Facebook page. www.facebook.com/carrryingcolin God bless!

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  8. I am so so sorry Dom. I read your blog the day that you posted it and I have been thinking of you, your wife and your family every day since. We are praying for you often and trusting that the Lord will use your babies life no matter how short it may be, to touch many hearts and win many souls for the Lord. Keep keeping your eyes on Jesus, you are an inspiration to so many! We love you.

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  9. Praying for you. I love what your mom said. I have 3 of my own, along with many other loved ones that beat me to my Lord's lap! I can't imagine carrying your baby full-term, knowing you have to say good-bye. But know this - God has chosen you for this. We cannot understand this side of heaven, but we can rejoice in the One who is the Great Redeemer and who loves your baby even more than you do. God's peace and God's glory be upon you.

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  10. Dominic. I cant tell you how shocking it was to have read this post on your blog. About a year ago my sister and I went to the house of blues in Anaheim when you opened up for Tyrone wells. My sister and I met you back stage and got a couple of your cds signed. In April of last year my husband and I found out we were expecting a child this November. In June we went in for our big ultrasound and found out our child also had “Anencephaly" and our choices were limited. We choose to end our pregnancy. Its November and sitting here empty bellied and with a broken heart. I wish I would have had the strength to see our child full term. Your story has given me a little bit of peace in knowing that I can move on an have a bright and happy future. Thank you.

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